Paediatric Coagulation Centre

We work as part of a multidisciplinary team.

• Dr. Beatrice Nolan, Consultant Haematologist
• Dr.Saad Ahmed, Consultant Haematologist

Advanced Nurse Practitioner candidate

This nursing role involves ongoing assessment, care and treatment of children with Haemophilia and other bleeding disorders. The Advanced Nurse Practitioner has a special interest in girls and teenagers with bleeding disorders.

There are four clinical nurse specialists (CNS).

Their role includes

• Education for you, your family and your child about their condition and treatments.
• Answering any questions you or your child have regarding their condition and treatment
• Organising and providing your child’s treatment in hospital
• Taking routine and urgent blood samples from your child
• Coordination of your child’s care with other services, for example the Dental Service.
• Supporting children and their families on Home Treatment
• Liaison with community services such as schools at your request.

MSW recognise that a child’s illness and attendance at hospital can be a stressful time for families, therefore we seek to offer both practical and emotional support with the aim of reducing these difficulties. MSW can provide information and assistance on support and entitlements and can direct families towards suitable community and voluntary support services, including onward referral if necessary. MSW may also become involved in child welfare and protection concerns, acknowledging that a child’s welfare is paramount. MSW can work closely with families, other professionals and statutory authorities to provide support to families when issues in this area arise. MSW work closely with MDT colleagues and referrals can be made to MSW by the team.

A Paediatric Psychology Service is provided to the children and young people who attend the Paediatric Coagulation Centre. Part of the role is to help children and young people, from birth to 18 years of age with any difficult feelings they may have about their health condition, and to support them and their families with any difficult aspects of managing their health condition. The service aims to complement the medical treatments that children receive, to maximise their coping and minimise any distress they experience. Referrals to Paediatric Psychology can be requested by the team.

Musculoskeletal (joint and muscle) health is assessed by the Physiotherapist at clinic visits. Education is provided on sport, exercise, injuries and bleeds. The Physiotherapist is also available to assess children and adolescents who experience musculoskeletal bleeds, injuries and pain. Personalised rehabilitation programmes are designed in partnership with the child or adolescent. Referral to the Physiotherapist can be requested by the team.

The Dental Department in CHI at Crumlin aims to provide oral health assessment and necessary treatment for children with Haemophilia and Allied Bleeding Disorders. When the team are notified of a newly diagnosed child, we aim to assess his/her needs and either offer an appointment here in CHI at Crumlin or refer to our dental colleagues in primary care. We offer treatment under local and general anaesthesia in Crumlin when necessary. The team works closely with the haematology service in order to help patients get the best care as close to home as possible. The team also works with the adult dental service in St James’s Hospital to help young people keep up good dental care as they become independent adults.

Coordination and Administrative support within the Haemophilia and Allied Bleeding Disorder Service. This role manages designated information systems and electronic patient records for patients with bleeding and clotting disorders.

TCP dispenses and delivers home treatment to patients with inherited bleeding disorders. Services also include medication fridge supply and maintenance, and sharps bin waste management and collection. If you have any query with your home treatment delivery contact TCP customer service. Tel: (01) 4291821

https://www.tcp.ie/contact

It is recommended that all parents download the home scan app (application) “MPRO5hX” onto their smart phone. This application will be used to scan home treatment before administration. If you have any problems downloading/using the app email: info@crimsontide.co.uk

Interpreter services are provided free of charge. Please contact Emma.murphy@childrenshealthireland.ie to organise this ahead of your next appointment.

Chaplains are professionals specifically trained in pastoral care in a hospital setting. Chaplaincy is about expressing respect and care, listening in a compassionate way and helping to create a space which recognises each person’s spiritual needs. https://www.childrenshealthireland.ie/list-of-services/chaplaincy/

We welcome your views on the service and care we provide, whether it is a compliment, suggestion or complaint. Your feedback helps to bring about meaningful improvements across all CHI locations. To give feedback on the service email patientfeedback@childrenshealthireland.ie